Seraya
has continued to make small improvements last week and this
week!
Seraya is doing well on her cpap so far. She is current on a pressure of 12 to keep her lungs open. At one point last week they tried to wean her pressure down to 11 but Seraya didn't tolerate it very well. She immediately started desatting and so they turned her back up. She is very dependent on extra breathing help still at this time.
Seraya received another eye exam this week Tuesday. The eye doctor explained to me that she could see that Serayas eyes were not growing properly, or I should say the blood vessels were beginning to grow crookedly already. So on Wednesday Seraya was given an injection of avastin in both eyes to stop the blood vessels from growing crooked. Today the eye doctor checked her eyes again and she said there are no complications from the injections and for that we are extremely thankful. Seraya will continue to have weekly eye exams, so they can continue to monitor the growth of her eyes.
Seraya wasn't gaining enough weight and so they added some extra fortifiers to my milk. They did not want her losing weight as they ensured us that this would not be good for the development of her lungs. In order for her lungs to continue to grow and develop, she has to continue to grow and gain weight. Lately she has been gaining about 30-40 grams every night. They switched her feeds to every 3 hours and they are pumped in to her over an hour and a half. She receives 30 mls every 3 hours. Currently she is weighing in at about 3 pounds and 9 ounces. We are very thankful that the Lord continues to enable her to grow and become stronger. What an immense blessing this is:)
Seraya is doing well on her cpap so far. She is current on a pressure of 12 to keep her lungs open. At one point last week they tried to wean her pressure down to 11 but Seraya didn't tolerate it very well. She immediately started desatting and so they turned her back up. She is very dependent on extra breathing help still at this time.
Seraya received another eye exam this week Tuesday. The eye doctor explained to me that she could see that Serayas eyes were not growing properly, or I should say the blood vessels were beginning to grow crookedly already. So on Wednesday Seraya was given an injection of avastin in both eyes to stop the blood vessels from growing crooked. Today the eye doctor checked her eyes again and she said there are no complications from the injections and for that we are extremely thankful. Seraya will continue to have weekly eye exams, so they can continue to monitor the growth of her eyes.
Seraya wasn't gaining enough weight and so they added some extra fortifiers to my milk. They did not want her losing weight as they ensured us that this would not be good for the development of her lungs. In order for her lungs to continue to grow and develop, she has to continue to grow and gain weight. Lately she has been gaining about 30-40 grams every night. They switched her feeds to every 3 hours and they are pumped in to her over an hour and a half. She receives 30 mls every 3 hours. Currently she is weighing in at about 3 pounds and 9 ounces. We are very thankful that the Lord continues to enable her to grow and become stronger. What an immense blessing this is:)
I know that the last blog post I talked about the steroids she was given. They have completely weaned her off of the steroid doses, and are waiting to see how she does with this. We are hoping her lungs continue to grow stronger without the help of another round of the hydro-cortisone steroids.
We continue to be able to enjoy lots of snuggles with Seraya which is amazing. It's a lot easier to take her out of the isolette now, without the worry of extubating her now that she's on cpap. If her prongs fall out we can just stick them back in her nose:)
I know in the last blog post I had also mentioned about her bilirubin levels and platelets improving. The bilirubin levels have continued to come down which is wonderful. The ursodile medication she is on seems to be helping. Her platelets have continued to come up on their own as well. They are currently sitting at 118 which is a good number for her.
Brian
and I continue to be thankful and amazed at how far Seraya has come
in these last few weeks. We still have a long road ahead of us, but
we are grateful for how she is doing. We truly see God's loving hand
in our lives, and see how he continues to give us the strength, to
travel on this road we are on. Once again we would like to thank
everyone for their continued support and prayers for our family.
Psalm 57: 9-11
"I will praise you, O Lord, among the nations; I will sing of you among the peoples. For great is your love, reaching to the heavens; you faithfulness reaches to the skies. Be exalted, O God, above the heavens; let your glory be over all the earth."
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